06 Dec A Life-Saving Stay
In 2022, Tricia and Brandon Murphy were stationed in Japan, navigating military life while raising their young family. They knew something was wrong when they noticed that their newborn daughter, Emma, was struggling to gain weight, had a yellowish tint to her skin, and changes in her stool. An urgent care visit confirmed their fears—Emma’s blood test showed dangerously high levels of bilirubin, suggesting a serious issue with her liver.
Doctors performed a cholangiogram, injecting dye from the intestinal side through Emma’s liver to track its passage. Unfortunately, the dye did not move, resulting in a diagnosis of biliary atresia, a rare and life-threatening liver condition. During surgery, the team pivoted, performing a life-saving procedure to help clear Emma’s bile ducts. Although Emma’s condition initially improved, her liver remained severely damaged. Her bilirubin levels spiked again, indicating she would need a liver transplant.
The Murphys traveled to Cleveland in search of the specialized care Emma needed. Initially staying at a local hotel, the cost became unmanageable. They needed to find a better solution for the four of them to remain in Cleveland while Emma received care. The Cleveland Ronald McDonald House became their home base for the next 397 days. It became more than just a place to stay; it gave them a sense of stability, comfort, and support.
Emma’s medical team in Japan collaborated with the team in Cleveland, sending her records to prepare for the transplant. Next she needed a new, donated liver. Although Emma’s father, Brandon was not a suitable match, a living donor stepped forward to give a very special gift—a portion of her liver.
Throughout this process, RMHC NEO was there to make sure the family had warm meals in their bellies, a roof over their heads, and a support system. Big brother Brock became a familiar part of the House family, frequenting the play areas and attending recreational activities. While Emma and her parents focused on appointments, Brock was able to visit the STAR Center at Cleveland Clinic Children’s Outpatient Center to play and learn in a safe environment just a few doors from his family.
Today, Emma is thriving. Her family remains forever grateful for the support they received from RMHC Northeast Ohio. Not only were they able to stay together to focus on what mattered most, they found a community of support and hope during the most challenging time of their lives.